Monthly Archives: February 2014

The wait is almost over

Posted on February 26, 2014 by Alicia Louise

So I met with the oncologist in Detroit at the Karmanos Cancer Institute last week. It went well — the visit was pretty straightforward, given that I am familiar with phase 1 trials and have a pretty good grasp of … Continue reading →

Posted in Uncategorized | Tagged , , , , , , | Leave a comment

Fundraising update

Posted on February 19, 2014 by Alicia Louise

This is hard to explain without being embarrassed, but at the urging of my Finance Committee, I have decided to raise the fundraising bar higher. We did not expect to raise this much money so early on in our efforts, … Continue reading →

Posted in Uncategorized | Tagged , , , , | Leave a comment

I’m overwhelmed

Posted on February 19, 2014 by Alicia Louise

I don’t know how many times I’ve said that over the past 12 hours. I’m absolutely stunned by the outpouring of support from everyone — and not just the financial support. Every share on Facebook and Twitter, all the beautiful, … Continue reading →

Posted in Uncategorized | Tagged , , , | 3 Comments

The state of things

Posted on February 11, 2014 by Alicia Louise

So I’ve spent the last few weeks looking into my treatment options and the news has not been great. Novartis, the makers of MEK162, the drug I responded to so well last year, won’t provide the investigational drug outside of … Continue reading →

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , | Leave a comment