Author Archives: Alicia Louise

About Alicia Louise

I'm a writer, editor, fact checker, storyteller, events organizer, chronically busy yet endlessly lazy, mildly neurotic (though I keep the neuroses well-hidden, one hopes) 32-year-old with recurrent ovarian cancer. I like people and good writing and straight talk. I have a hard time feeling sorry for people, including myself, but the people that I love, I love passionately; one may even say creepily. I try to keep that mostly to myself. I'd like to be charming, but I'm usually just a mess. I'm like a gull slamming into your windshield.

A Broken Heart. An End of an Era.

Alicia went into Hospice at the beginning of November. She wasn’t ready, but her medical team felt that she needed care that couldn’t be provided at home. After her hospitalization where she learned she had six months left, she came … Continue reading

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Sixth months

I recently spent two weeks in the hospital with small bowel obstruction and kidney failure amongst other problems. Things are progressing and the prognosis isn’t great. My oncologist is giving me approximately six months. The bowel obstructions aren’t clearing up … Continue reading

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So long, Detroit

I quit the trial. There were several reasons for this. My last CT scan was considered “stable”, but in truth there has been some progression. A small amount, but progression all the same. The most significant being spread to the … Continue reading

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Time to check in

I feel guilty not letting people know how I’m doing, especially given all the support I’ve received. The least I could do is keep in touch, let you know what’s happening. I went through a pretty intense period of depression. … Continue reading

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A long overdue update

It’s been a rough two months. Not only did I start the Detroit trial in April, I also traveled for personal reasons. I was out of Toronto for most of the month, living out of a suitcase. Travel is difficult … Continue reading

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It’s a (tentative) go

I talked to yet ANOTHER person from Karmanos today (so far, I’ve collected no less than six phone numbers from people involved in my case) and he told me that I’ll know next week which cohort of the trial I … Continue reading

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The wait is almost over

So I met with the oncologist in Detroit at the Karmanos Cancer Institute last week. It went well — the visit was pretty straightforward, given that I am familiar with phase 1 trials and have a pretty good grasp of … Continue reading

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