I’m much less maudlin in real life.
Hello. My name is Cliff McCloe. I represent http://www.thedayifoundout.com. We found your webpage through Twitter. We are currently revamping our sit to allow anyone affected by cancer to share their story through video. Here’s the nutshell version of what we’re doing.
1) Cancer patients, survivors and loved-ones make a homemade video, telling the story about how they dealt with cancer, focusing on the day they found out they (or their loved one) had cancer.
2) We post the videos on our site.
3) We link the videos to the user’s webpage, blog, Facebook, Twitter and/or other cancer-related sites of your choice.
For more details about the project, go to http://www.thedayifoundout.com/pdf/newvideos.pdf
I read a bit of your blog (Good luck with your cottage cheese diet!) ; We’d love it if you would consider sharing your story on our site.
Hope to hear from you soon.
We met over the phone a few years back. I called you looking for “CURVES snitch hot line” hopping to report my wife who indulged in a double chochalate mouse cheese cake over that weekend. You ended up giving Margaret a extended POWER workout to burn off the extra calories . Write us . Margaret wants to here from you
PS Do you still have that bicycle , I still want to “PINP UP YOUR RIDE”
Alas, I’ve traded in that bike for one much faster and lighter. I remember you well! Tell Margaret she’s welcome to email me at alicia dot merchant at gmail dot com. I was thinking of her recently but couldn’t find her email address — we ran into one another last spring at the Trinity Bellwoods community centre (at least I think it was last spring!)
Just to let you know that you are in my thoughts and prayers. I’ve been through an awful last three months but I can see some hope in my life now so I will send some of that hope to you and wish you the best in your recovery. Thank you for having the courage to share your struggles, you are a wonderful inspiration. People in our society seem to have so many “problems” and “complaints” (I’m glad you didn’t clock the SUV guy, I might have) yet we have a very poor concept of what real struggles are.
I will keep sending you positive thoughts.
My name is Rachael and like you I write a WordPress blog about living with an incurable cancer (I got diagnosed in March). I’ve had a look at your blog and I’d like to say I admire how open you are about your condition. A lot of cancer patients I’ve me (myself included) feel the need to act like everything is great all the time, even when it really isn’t and everything feels too too overwhelming. I admire your honesty and your courage. All the best! R x
Hi – I found you through the link you posted on The New York Times story Living With Cancer. (I replied too). I want to be sure to read your blog and you can find some of my “cancer posts” on mine. So far, I am 3 years in remission from BC, but I accept (on some level) that that can change. I look forward to reading your blog. It’s a brave act to expose everything and let people in, although I found, highly therapeutic.
Hey, I’m looking forward to checking out your blog. Thanks for finding me here. Glad you are in remission and hope that is the case ad infinitum. xo
What’s your blog address?
Hi Alicia, have you made any progress on your search for information about the Genelux clinical trials of their virus-based cancer therapy I wrote about? And if so, please post an update on my national news blog and let us all know. Thanks, hope you are doing well.
I haven’t had a reply from Dr. Ulrich Lauer, the head investigator in Germany, but I have been in contact with Ulrike Szalay. I just sent her an update to let her knw I haven’t heard from Dr. Lauer again and to ask if she has heard anything. I do know that the trials conducted in England require the patient to have UK health care coverage but that was not believed to be the case for the German trial. I’ve been in the midst of a move, so haven’t had a lot of time to follow up on the barriers and potential ways to overcome them.
My brother is someone who takes part in your story telling events in Toronto. He suggested I contact you, because you’re writing a book…or getting together a compilation of stories from women who’ve suffered or are suffering from cancer. I’m one of those and I’d love to talk to you.
It’s good reading your blog, Alicia. As someone with Crohn’s and related inflammatory conditions and complications, it’s helpful to read someone articulate what I sometimes go through in such a precise and eloquent way. Your most recent blog about relentless fatigue and all the other shitty stuff (reflux, poor sleep, benzos) is all very familiar to me. Chronic over- or under-active immune functioning is exhausting in every possible way. Keep resting, write when you feel like it, eat what feels right and pleasurable, and do whatever you need to to get through the day.
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