I ended up in the ER last night with a 39 degree fever. I felt as miserable as I ever have; my throat felt like it was pierced with daggers, my head felt like it’d been bludgeoned, I was chilled and dizzy. I was run through a battery of tests and sent home with an antibiotic.
When I came in to the hospital this morning, I was run through more tests. Apparently I am the first patient on the trial to develop mucositis after one treatment. (In case you’re wondering what that is, it’s inflammation and ulcers through my mouth and throat; my tonsils have it the worst, leaving me to wonder again why I didn’t just bother getting them out after years of infections.) I guess someone has to throw a curve ball in the trial once in awhile, and considering there are only around 20 of us so far, it’s not surprising it would be me.
Oh, and in case the sores in my mouth and throat weren’t enough, I also seem to have strep throat. So I was right the first time when I thought there was something other than side effects going on. To deal with everything, I’ve been prescribed this special mouthwash that I have to swallow and which numbs the pain while helping heal the sores (and tasting awful), codeine, and massive amounts of ibuprofen (which I was just informed I can’t take because my platelets dropped too low).
My sister took the dog last night and is keeping her until Sunday, so I can lay low and recover for a couple days. I’m keeping my fingers crossed that once the mucositis and strep are cleared up, my energy will come back. The first few days after treatment weren’t bad, so maybe this is all an anomaly and not a sign of things to come. I certainly hope so. I can’t imagine feeling like this week in and week out. This trial is supposed to be easier than traditional chemo.
Benadryl drip is about to start, so I better stop writing before I spiral into nonsense. Thanks to everyone who has helped me out the last little while. I’ve been the recipient of a lot of kindness and I really do appreciate it. It’s hard to find the words to say just how much.